Monthly Archives: April 2002

Tuesday 30th April 2002

Maddie recommenced her 21 day oral chemo today. She needed the all clear from the neuros before that could happen.

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Monday 29th April 2002

Maddie continues to improve after her marathon surgery. She has her bandages removed and goes back to the ward this afternoon. Again we end up in our own room as Maddie is still classified as a chicken pox contact. This

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Friday 26th April 2002

Today was the most physically and mentally draining day we could ever expect to have in ours or Maddie’s entire lifetime. The surgery Maddie was about to face was designed to save her life in the short term but would

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Tuesday 23rd April 2002

Maddie’s condition hasn’t improved any. She doesn’t know we are by her bedside. The doctors make the decision to do another MRI scan. The news is not good. The tumor has progressed, but not into the empty space left by

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Sunday 21st April 2002

Once again Maddie’s conscious state proves to be volatile. Her condition has deteriorated again today so much so that Maddie is again moved back to ICU at 7.30pm. To add to the complications she has come into contact with a

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Saturday 20th April 2002

Maddie remained in ICU until 1.30 this afternoon when she again went back to Ward 6 West. Just briefly the shunt appears to be doing it’s job as Maddie was able to sit in a stroller and go for a

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Friday 19th April 2002

The CT scan showed the fluid building up in the left ventricles and it was most probably caused by a blockage of the shunt. Maddie again goes into surgery to have the shunt revised. It turns out the top portion

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Thursday 18th April 2002

They move Maddie back out of ICU to the ward at 7.00 pm tonight. We’re not entirely happy as Maddie still only seems to be semi conscious. We headed home to try and get some sleep as Maddie was sleeping

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Wednesday 17th April 2002

Maddie’s conscious state is changing all the while today. She seems to be very drowsy and at times incapable of waking up from sleep. The 18 hours of fluid is interrupted to send her back to ICU as a precaution

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Tuesday 16th April 2002

Maddie has been doing very well over the last few days and is quite aware of us and what’s going on around her. Today she is due to have the first stage of chemotherapy. Three hours of fluids followed by

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